News & Resouces

The Latest News from OACS Ireland

Valproate Pregnancy

Epilepsy Ireland Survey Results on Epilim (Sodium Valproate) and Statement of same

By Karen | July 3, 2020

From the end of 2019 to the beginning of 2020, Epilepsy Ireland ran a survey aimed at measuring the effectiveness of measures introduced in 2018 on the prescribing and dispensing of Sodium Valproate (Epilim). Epilepsy Ireland have now released the…

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T-Byrne

Epilepsy is So Much More Than Seizures 2020

By Karen | May 21, 2020

Epilepsy is So Much More Than Seizures 2020 #MoreThanSeizures  The Testimony of Theresa Byrne “I was first prescribed Epilim (Sodium Valproate) in 1986 for generalised epilepsy.  At that point, I did not know about the impact it would have on…

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The UK MHRA Update on Epilim-Valproate

By Karen | May 8, 2020

The UK MHRA Regulatory Guidance on the Epilim – Valproate Pregnancy Prevention Program (PREVENT) Temporary advice for management during coronavirus (COVID-19) pandemic.   OACS Ireland welcomes the UK regulators the MHRA guidance for specialists for initiation of valproate in female patients…

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Epilim - (Valproate) -Edition of the HPRA Drug Safety Newsletter

The May Edition of the HPRA Drug Safety Newsletter 

By Karen | May 6, 2020

The May Edition of the HPRA Drug Safety Newsletter which is a dedicated issue on serious teratogenic risks of Epilim▼- (Valproate) containing medicines.     We like to welcome the HPRA’s decision to issue a reminder in the form of…

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“EASTER BUNNY COMPETITION TIME”

ACTIVITIES

By Karen | April 3, 2020

   Organisation Anticonvulsant Syndromes Ireland      “EASTER BUNNY COMPETITION TIME”   The OACS Ireland team have put together a collection of Free to print Easter colouring pages that you can download for all ages and for you to enjoy…

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OACS Ireland – ACTIVITIES

By Karen | April 3, 2020

Rachel McManus: Works with ALL Social Groups in the area of Dublin and Meath. Her experience is vast, Rachel works with adults with Special needs in (Prosper Meath), Autistic Groups, and Mainstream. She has witnessed the amazing effects of LEGO…

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ACTIVITIES

LEGO – LEGO – LEGO ALL THINGS LEGO TECHNIC 2020

By Karen | April 2, 2020

  OACS Ireland is very proud to showcase the “amazing work with Lego Technic” that has been completed while staying home due to Coronavirus. We find that some of our children are very creative with Lego Technic as they grow.…

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Organisation Anticonvulsant Syndromes – OACS Ireland – THE ARTWORK CORNER

By Karen | March 30, 2020

THE ARTWORK CORNER OACS Ireland are proud to show case some of the Artwork from the adults impacted by FVS and/or FVSD. We find some of our children grow up with some “amazing talents” which we are very proud showcase.…

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“COVID – 19 Updates”

By Karen | March 29, 2020

Organisation Anticonvulsant Syndrome OACS Ireland As the emergence of Coronavirus in Ireland continues, we are receving queries from people with Fetal Valproate Syndrome (FVS) / Fetal Valproate Spectrum Disorder (FVSD) and their families about what the virus may mean for…

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IMPORTANT UPDATE via the MHRA

By oacsireland | February 17, 2020

In January 2020, relevant healthcare professionals were sent by post or Alliance Tote boxes (for pharmacies) a letter and updated educational materials. The MHRA Valproate guidance page has also been updated with the latest materials. https://www.gov.uk/drug-safety-update/valproate-epilim-depakote-pregnancy-prevention-programme-updated-educational-materials  A reminder of key facts about…

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Videos / Media

OACS Ireland: The Story So Far

Public Hearing on Valproate

Epilim (Sodium Valproate): For Patients*

Epilim (Sodium Valproate): For Hospital Doctors*

Epilim (Sodium Valproate): For Neurologists & Psychiatrists*

Epilim (Sodium Valproate): For GPs*

*The Medication Safety Minute Team in conjunction with Dr Colin Doherty, Epileptologist in St. James’s Hospital (SJH), have produced a series of 4 videos to highlight the risks associated with sodium valproate medicines if taken during pregnancy. Each of the videos highlights key points in relation to the management of the issue from a different perspective − that of the patient, the hospital doctor, the specialist (neurologist or psychiatrist), and the GP, respectively. These videos were released during National Epilepsy Week which aims to raise awareness Epilim (Sodium Valproate) in pregnancy.