News & Resouces

The Latest News from OACS Ireland

The HPRA #MedSafetyWeek – “Every Report Counts”

By Karen | November 2, 2020

The Health Products Regulatory Authority, are seeking support for the fifth annual #MedSafetyWeek, which sees 74 medicine regulatory authorities across the world taking part in a social media campaign to raise awareness of suspected side effects from medicines, and the importance…

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Organisation for Anticonvulsant Syndromes Ireland Annual Report.

By Karen | October 29, 2020

2019 proved a landmark year for OACS Ireland. Our organisation has been in existence for just over a year but 2019 was a year of considerable progress. We were approved as a charity by the Charities Regulator which means we…

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Epilepsy Ireland & OACS Ireland to meet with Minister for Health regarding Sodium Valproate.

By Karen | October 29, 2020

Wednesday, October 28, 2020 Epilepsy Ireland and OACS Ireland have received an invitation from the Minister for Health, Deputy Stephen Donnelly to meet regarding our ongoing campaign surrounding Sodium Valproate (Epilim) next Wednesday. We have accepted this invitation and welcome the opportunity…

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Anticonvulsant Drug List History of dates

By Karen | October 19, 2020

The dates provided above are the calendar years in which the respective active (medication) were first authorised for use in Ireland through official regulatory processes. Some of the older anticonvulsants would have been available for use in Ireland. Active substance…

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Budget 2021 changes which may affect OACS Ireland members and their families

By Karen | October 17, 2020

Carbon tax The carbon tax on fuel will increase by €7.50 from €26 per tonne to €33.50 per tonne. The effect of this increase will be to add approximately €2 to the cost of a tank of fuel for a patrol car…

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Covid – 19 – Update OACS Ireland

By Karen | October 6, 2020

All remaining counties to join Donegal and Dublin on Level 3 under Ireland’s Plan for Living with COVID-19 – https://gov.ie/…/f3d24-all-remaining-counties-to-join…/ The government has decided that, from midnight last night the 6th October, all remaining counties will be placed on Level…

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OACS Ireland launch Petition raising awareness of Campaign for Independent Inquiry.

By Karen | September 14, 2020

OACS Ireland have launched a new petition to raise awareness of our calls for an independent inquiry into sodium valproate (epilim). As we await correspondence from Minister Stephen Donnelly, the petition aims to increase awareness of our campaign amongst the…

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OACS Ireland & Epilepsy Ireland seek response from Minister Donnelly regarding Independent Inquiry on Sodium Valproate

By Karen | September 14, 2020

Together with our colleagues in Epilepsy Ireland, OACS Ireland have written again to Minister for Health, Deputy Stephen Donnelly, following up on our request for an urgent meeting to discuss the establishment of an independent inquiry for families impacted by Sodium…

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New Patient Information Leaflet Published for (Epilim▼) – Sodium Valproate

By Karen | August 20, 2020

An updated Patient Information Leaflet has been published for women and girls that are taking Sodium Valproate (Epilim). The Patient Information Leaflet has been updated to incorporate further research which has taken place on the potential impacts of the drug…

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Epilim - (Valproate) -Edition of the HPRA Drug Safety Newsletter

TD Letter – for our ongoing campaign for an Independent Inquiry for Families affected by Sodium Valproate (Epilim).

By Karen | August 11, 2020

OACS Ireland are asking our members to write to their local TD to ask for their support for our ongoing campaign for  an Independent Inquiry for Families affected by Sodium Valproate (Epilim). You can see more on our calls for…

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Videos / Media

OACS Ireland: The Story So Far

Public Hearing on Valproate

Epilim (Sodium Valproate): For Patients*

Epilim (Sodium Valproate): For Hospital Doctors*

Epilim (Sodium Valproate): For Neurologists & Psychiatrists*

Epilim (Sodium Valproate): For GPs*

*The Medication Safety Minute Team in conjunction with Dr Colin Doherty, Epileptologist in St. James’s Hospital (SJH), have produced a series of 4 videos to highlight the risks associated with sodium valproate medicines if taken during pregnancy. Each of the videos highlights key points in relation to the management of the issue from a different perspective − that of the patient, the hospital doctor, the specialist (neurologist or psychiatrist), and the GP, respectively. These videos were released during National Epilepsy Week which aims to raise awareness Epilim (Sodium Valproate) in pregnancy.