News & Resouces

The Latest News from OACS Ireland

Medications in Epilepsy

“Fatherhood, AEDs and good news for men with epilepsy”

By Karen | July 19, 2020

  Many of the families involved with OACS Ireland have reported that often young men with epilepsy who would like to have children with their partners worry that by taking Sodium Valproate (Epilim) or other anti-epileptic drugs (AEDs) for their…

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OACS Ireland & Epilepsy Ireland on our Campaign for an Independent Inquiry (Epilim) Sodium Valproate in Ireland

By Karen | July 15, 2020

Today marks one week since the publication of the  ‘First Do No Harm’ report in the UK. In the wake of the report and it’s findings, OACS Ireland alongside our colleagues in Epilepsy Ireland called for an independent inquiry to…

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-New Government face demands for Independent Inquiry from families impacted by Sodium Valproate (Epilim) in Ireland- -Independent Inquiry in UK recommends State Apology for victims-

-New Government face demands for Independent Inquiry from families impacted by Sodium Valproate (Epilim) in Ireland -Independent Inquiry in UK recommends State Apology for victims-

By Karen | July 8, 2020

  The newly formed coalition Government must now commission an independent inquiry into the historical licencing and use of a common epilepsy drug according to patient groups, OACS Ireland and Epilepsy Ireland. Sodium Valproate (Epilim) has been licenced in Ireland…

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-New Government face demands for Independent Inquiry from families impacted by Sodium Valproate (Epilim) in Ireland- -Independent Inquiry in UK recommends State Apology for victims-

#Firstdonoharm IMMDS UK Review Report – Key Recommendations

By Karen | July 8, 2020

#Firstdonhoharm Report – Key Recommendations The outcome of a two year inquiry in the UK which investigated how the British Healthcare authorities responded to reports of patient concerns regarding the use of sodium valproate (epilim) in pregnancy to which OACS…

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Valproate Pregnancy

Epilepsy Ireland Survey Results on Epilim (Sodium Valproate) and Statement of same

By Karen | July 3, 2020

From the end of 2019 to the beginning of 2020, Epilepsy Ireland ran a survey aimed at measuring the effectiveness of measures introduced in 2018 on the prescribing and dispensing of Sodium Valproate (Epilim). Epilepsy Ireland have now released the…

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T-Byrne

Epilepsy is So Much More Than Seizures 2020

By Karen | May 21, 2020

Epilepsy is So Much More Than Seizures 2020 #MoreThanSeizures  The Testimony of Theresa Byrne “I was first prescribed Epilim (Sodium Valproate) in 1986 for generalised epilepsy.  At that point, I did not know about the impact it would have on…

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The UK MHRA Update on Epilim-Valproate

By Karen | May 8, 2020

The UK MHRA Regulatory Guidance on the Epilim – Valproate Pregnancy Prevention Program (PREVENT) Temporary advice for management during coronavirus (COVID-19) pandemic.   OACS Ireland welcomes the UK regulators the MHRA guidance for specialists for initiation of valproate in female patients…

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Epilim - (Valproate) -Edition of the HPRA Drug Safety Newsletter

The May Edition of the HPRA Drug Safety Newsletter 

By Karen | May 6, 2020

The May Edition of the HPRA Drug Safety Newsletter which is a dedicated issue on serious teratogenic risks of Epilim▼- (Valproate) containing medicines.     We like to welcome the HPRA’s decision to issue a reminder in the form of…

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“EASTER BUNNY COMPETITION TIME”

ACTIVITIES

By Karen | April 3, 2020

   Organisation Anticonvulsant Syndromes Ireland      “EASTER BUNNY COMPETITION TIME”   The OACS Ireland team have put together a collection of Free to print Easter colouring pages that you can download for all ages and for you to enjoy…

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OACS Ireland – ACTIVITIES

By Karen | April 3, 2020

Rachel McManus: Works with ALL Social Groups in the area of Dublin and Meath. Her experience is vast, Rachel works with adults with Special needs in (Prosper Meath), Autistic Groups, and Mainstream. She has witnessed the amazing effects of LEGO…

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Videos / Media

OACS Ireland: The Story So Far

Public Hearing on Valproate

Epilim (Sodium Valproate): For Patients*

Epilim (Sodium Valproate): For Hospital Doctors*

Epilim (Sodium Valproate): For Neurologists & Psychiatrists*

Epilim (Sodium Valproate): For GPs*

*The Medication Safety Minute Team in conjunction with Dr Colin Doherty, Epileptologist in St. James’s Hospital (SJH), have produced a series of 4 videos to highlight the risks associated with sodium valproate medicines if taken during pregnancy. Each of the videos highlights key points in relation to the management of the issue from a different perspective − that of the patient, the hospital doctor, the specialist (neurologist or psychiatrist), and the GP, respectively. These videos were released during National Epilepsy Week which aims to raise awareness Epilim (Sodium Valproate) in pregnancy.