The Latest News from OACS Ireland
A spokesman for OACS Ireland and Epilepsy Ireland, supporting the families, said the meeting took place on Tuesday. “The meeting was a frank exchange of views on the latest proposed terms of reference for the inquiry, between the patient groups…More . . .
A Irish Independent Exclusive. The stories of the families affected by Sodium Valproate (Epilim) in Ireland…
The Irish Independent have published a documentary featuring women who were prescribed Sodium Valproate (Epilim) during pregnancy. The documentary discusses how this has affected their life and the lives of their children. The feature is a powerful piece which highlights…More . . .
OACS Ireland & Epilepsy Ireland to meet with Minister for Health regarding Epilim (Sodium Valproate) Inquiry
Last Updated: Wed, 10/08/2022 OACS Ireland & Epilepsy Ireland will be meeting with the Minister for Health regarding the proposed Terms of Reference into the historical licensing and prescribing of Epilim (Sodium Valproate). This drug can cause a range of disabilities…More . . .
A new study has found that the potential neurodevelopmental impacts associated with the anti-epileptic drug (AED) Topiramate (Topamax) if prescribed during pregnancy may be more significant than previously thought. The study also found increased risks associated with other AEDs when…More . . .
Last Updated: Wed,08/06/2022 – 07:43 Epilepsy Ireland and OACS Ireland met with Department of Health officials yesterday to discuss the establishment of the long-awaited Sodium Valproate inquiry. There was an open and honest discussion about the delays in establishing the inquiry…More . . .
Last Updated: Thu, 26/05/2022 – 15:23 The need for the urgent establishment on the promised inquiry into the historical licensing and prescribing of Sodium Valproate (Epilim); alongside the need for services for families impacted; has been raised in the Dáil again…More . . .
Last Updated: Fri, 20/05/2022 – 07:17 In the Dáil last week, Deputy Pearse Doherty raised the need for the establishment of the promised inquiry into the historical licensing and prescribing of Sodium Valproate (Epilim). https://bit.ly/3PAeWmo We and our colleagues in Epilepsy Ireland…More . . .
UK media coverage outlines why outstanding valproate related commitments must be prioritised in Ireland
Last Updated: Wed, 20/04/2022 – 08:23 An in-depth feature in this week’s Sunday Times (UK) has highlighted the ongoing plight of families who have been impacted by Sodium Valproate (Epilim), their fight for redress to be provided by the British state…More . . .
This year’s, annual #MedSafetyWeek the HPRA global social media campaign which stakeholders have been asked to support on social media throughout this week-long campaign from 1- 7 November 2021 is all about COVID-19 vaccines side effects (Adverse Drug Reactions). #MedSafetyWeek is…More . . .
Downloads & Resources
Links to Website Resources
- OACS Facebook Group
- OACS YouTube Channel
- OACS UK Charity
- Epilepsy Ireland
- Irish Epilepsy and Pregnancy Register
- Irish Family Planning Association
- Birth Control (HSE Website)
- Valproate (Epilim) Patient Booklet (HPRA)
- EMA – Information & reviews on Valproate
- Valproate Information(HSE Website)
- Meeting highlights from PRAC
- OACS Ireland Leaflet
- National Conference on the Consequences of Sodium Valproate
- Joint Committee on Health Report on Foetal Anti-Convulsant Syndrome
- Valproate (Epilim) is a medicine licensed in Ireland to treat epilepsy and bipolar disorder
- 2019 Neurology Referral Specialist
- HSE Report on prenatal exposure
- 2018 Sodium Valproate who knew what and when
- 2019 Videos from the National Conference on Sodium Valproate
- 2018 FACS Forum welcomes HSE’s plans to contact patients directly regarding Sodium Valproate
- 2019 Study identifies the risk of malformations associated with prenatal exposure to 10 epilepsy drugs
Videos / Media
OACS Ireland: The Story So Far
Public Hearing on Valproate
Epilim (Sodium Valproate): For Patients*
Epilim (Sodium Valproate): For Hospital Doctors*
Epilim (Sodium Valproate): For Neurologists & Psychiatrists*
Epilim (Sodium Valproate): For GPs*
*The Medication Safety Minute Team in conjunction with Dr Colin Doherty, Epileptologist in St. James’s Hospital (SJH), have produced a series of 4 videos to highlight the risks associated with sodium valproate medicines if taken during pregnancy. Each of the videos highlights key points in relation to the management of the issue from a different perspective − that of the patient, the hospital doctor, the specialist (neurologist or psychiatrist), and the GP, respectively. These videos were released during National Epilepsy Week which aims to raise awareness Epilim (Sodium Valproate) in pregnancy.