The Latest News from OACS Ireland
Deputy Rose Conway-Walsh speech. In the Dáil, Deputy Rose Conway-Walsh raised the ongoing delays surrounding details of the promised inquiry into the historical licensing and prescribing of Sodium Valproate (Epilim) in Ireland. The Minister for Health, Deputy Stephen Donnelly confirmed…More . . .
The HSE Chief Officer’s Community Operation List for Foetal Valproate Spectrum Disorder/Syndrome (FVSD) / (FVS).
For families that have received a diagnosis of Foetal Valproate Spectrum Disorder/Syndrome (FVSD) / (FVS). The HSE estimate that 1,250 children in Ireland have been impacted by exposure to (Sodium Valproate) (Epilim) in the womb. Many of these families were…More . . .
As you know, OACS Ireland alongside our colleagues in Epilepsy Ireland are continuing to keep the pressure on Government regarding the many outstanding matters surrounding Sodium Valproate (Epilim). The establishment of an inquiry into the historical licensing and prescribing of…More . . .
OACS Ireland is a voluntary organisation that supports families who have been impacted by the drug Epilim (Sodium Valproate. Epilepsy Ireland is the national patient organisation supporting and representing people with epilepsy and their families. OACS Ireland and Epilepsy Ireland…More . . .
On the fourth day of #EpilepsyWeek, we focus on the families who have been impacted by Sodium Valproate (Epilim)
On the fourth day of #EpilepsyWeek, we focus on the families who have been impacted by Sodium Valproate (Epilim). As a result of being exposed to Valproate in utero, families are caring for children with a range of disabilities –…More . . .
DAY 3 #EpilepsyWeek Today as part of #EpilepsyWeek, we focus on the need for a stakeholder group to be established by the Minister to review and strengthen the risk reduction measures around Sodium Valproate (Epilim). There are currently approximately 1,700…More . . .
On the second day of #EpilepsyWeek, we continue our focus on the various elements of our campaign around Sodium Valproate(Epilim). Today we are highlighting how measures must be put in place to help ensure no family is impacted by Sodium…More . . .
Today is the first day of National Epilepsy Week. We are joining with our colleagues in Epilepsy Ireland to #AdvocateForEpilepsy, and specifically, we will be focussing on our ongoing campaign surrounding Sodium Valproate(Epilim). Throughout the week, we will be focussing…More . . .
The cyber attack on the HSE IT systems has caused some disruptions to their services. Please see update. Hospital appointments Most appointments will go ahead as planned but many x-ray appointments are cancelled. See updates from each hospital by county Community…More . . .
OACS Ireland are contacting mothers who have received a diagnosis of (FVSD) or (FVS) Foetal Valproate Syndrome/Spectrum Disorder. To date OACS Ireland has put seven children and one adult forward to Primary Care Services. If you have a received a…More . . .
Downloads & Resources
Links to Website Resources
- OACS Facebook Group
- OACS YouTube Channel
- OACS UK Charity
- Epilepsy Ireland
- Irish Epilepsy and Pregnancy Register
- Irish Family Planning Association
- Birth Control (HSE Website)
- Valproate (Epilim) Patient Booklet (HPRA)
- EMA – Information & reviews on Valproate
- Valproate Information(HSE Website)
- Meeting highlights from PRAC
- OACS Ireland Leaflet
- National Conference on the Consequences of Sodium Valproate
- Joint Committee on Health Report on Foetal Anti-Convulsant Syndrome
- Valproate (Epilim) is a medicine licensed in Ireland to treat epilepsy and bipolar disorder
- 2019 Neurology Referral Specialist
- HSE Report on prenatal exposure
- 2018 Sodium Valproate who knew what and when
- 2019 Videos from the National Conference on Sodium Valproate
- 2018 FACS Forum welcomes HSE’s plans to contact patients directly regarding Sodium Valproate
- 2019 Study identifies the risk of malformations associated with prenatal exposure to 10 epilepsy drugs
Videos / Media
OACS Ireland: The Story So Far
Public Hearing on Valproate
Epilim (Sodium Valproate): For Patients*
Epilim (Sodium Valproate): For Hospital Doctors*
Epilim (Sodium Valproate): For Neurologists & Psychiatrists*
Epilim (Sodium Valproate): For GPs*
*The Medication Safety Minute Team in conjunction with Dr Colin Doherty, Epileptologist in St. James’s Hospital (SJH), have produced a series of 4 videos to highlight the risks associated with sodium valproate medicines if taken during pregnancy. Each of the videos highlights key points in relation to the management of the issue from a different perspective − that of the patient, the hospital doctor, the specialist (neurologist or psychiatrist), and the GP, respectively. These videos were released during National Epilepsy Week which aims to raise awareness Epilim (Sodium Valproate) in pregnancy.