News & Resouces

The Latest News from OACS Ireland

New Irish study finds that ‘continued effort is needed’ in reducing valproate risks.

By Karen | September 17, 2021

A new study which investigated the awareness, knowledge, and practice of healthcare professionals in implementing the Sodium Valproate (Epilim) Pregnancy Prevention Program (PPP) has been published in the medical journal Expert Opinion on Drug Safety. The study was conducted by researchers…

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OACS Ireland & Epilepsy Ireland urge the Minister to act on his promise for a fast & fair inquiry into the Historical use of Epilim (Sodium Valproate).

By wpengine | August 12, 2021

It has been 46 years since the granting of the license of Epilim (Sodium Valproate) in Ireland. The overwhelming impact it has had on families clearly evident. OACS Ireland families have been dealt a dreadful hand in life, and it…

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The Sodium Valproate (Epilim) Campaign

By Karen | July 16, 2021

Deputy Rose Conway-Walsh speech. In the Dáil, Deputy Rose Conway-Walsh raised the ongoing delays surrounding details of the promised inquiry into the historical licensing and prescribing of Sodium Valproate (Epilim) in Ireland. The Minister for Health, Deputy Stephen Donnelly confirmed…

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The HSE Chief Officer’s Community Operation List for Foetal Valproate Spectrum Disorder/Syndrome (FVSD) / (FVS).

By oacsireland | June 22, 2021

For families that have received a diagnosis of Foetal Valproate Spectrum Disorder/Syndrome (FVSD) / (FVS). The HSE estimate that 1,250 children in Ireland have been impacted by exposure to (Sodium Valproate) (Epilim) in the womb. Many of these families were…

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Sodium Valproate (Epilim) – Matters for your TD/Senator

By Karen | June 21, 2021

As you know, OACS Ireland alongside our colleagues in Epilepsy Ireland are continuing to keep the pressure on Government regarding the many outstanding matters surrounding Sodium Valproate (Epilim). The establishment of an inquiry into the historical licensing and prescribing of…

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“The Epilim (Sodium Valproate) Dublin Protest by parents & children impacted by the drug”

By Karen | June 2, 2021

OACS Ireland is a voluntary organisation that supports families who have been impacted by the drug Epilim (Sodium Valproate. Epilepsy Ireland is the national patient organisation supporting and representing people with epilepsy and their families. OACS Ireland and Epilepsy Ireland…

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On the fourth day of #EpilepsyWeek, we focus on the families who have been impacted by Sodium Valproate (Epilim)

By Karen | May 27, 2021

On the fourth day of #EpilepsyWeek, we focus on the families who have been impacted by Sodium Valproate (Epilim). As a result of being exposed to Valproate in utero, families are caring for children with a range of disabilities –…

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Today as part of #EpilepsyWeek, we focus on the need for a Stakeholder Group !

By Karen | May 26, 2021

DAY 3 #EpilepsyWeek Today as part of #EpilepsyWeek, we focus on the need for a stakeholder group to be established by the Minister to review and strengthen the risk reduction measures around Sodium Valproate (Epilim). There are currently approximately 1,700…

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On the second day of #EpilepsyWeek we speak about the urgent need for Epilepsy Nurse Specialists !

By Karen | May 25, 2021

On the second day of #EpilepsyWeek, we continue our focus on the various elements of our campaign around Sodium Valproate(Epilim). Today we are highlighting how measures must be put in place to help ensure no family is impacted by Sodium…

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Today it is National Epilepsy Week #AdvocateForEpilepsy

By Karen | May 25, 2021

Today is the first day of National Epilepsy Week. We are joining with our colleagues in Epilepsy Ireland to #AdvocateForEpilepsy, and specifically, we will be focussing on our ongoing campaign surrounding Sodium Valproate(Epilim). Throughout the week, we will be focussing…

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Videos / Media

OACS Ireland: The Story So Far

Public Hearing on Valproate

Epilim (Sodium Valproate): For Patients*

Epilim (Sodium Valproate): For Hospital Doctors*

Epilim (Sodium Valproate): For Neurologists & Psychiatrists*

Epilim (Sodium Valproate): For GPs*

*The Medication Safety Minute Team in conjunction with Dr Colin Doherty, Epileptologist in St. James’s Hospital (SJH), have produced a series of 4 videos to highlight the risks associated with sodium valproate medicines if taken during pregnancy. Each of the videos highlights key points in relation to the management of the issue from a different perspective − that of the patient, the hospital doctor, the specialist (neurologist or psychiatrist), and the GP, respectively. These videos were released during National Epilepsy Week which aims to raise awareness Epilim (Sodium Valproate) in pregnancy.