News & Resouces

The Latest News from OACS Ireland

-New Government face demands for Independent Inquiry from families impacted by Sodium Valproate (Epilim) in Ireland- -Independent Inquiry in UK recommends State Apology for victims-

By Karen | July 8, 2020

-New Government face demands for Independent Inquiry from families impacted by Sodium Valproate (Epilim) in Ireland- -Independent Inquiry in UK…

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-New Government face demands for Independent Inquiry from families impacted by Sodium Valproate (Epilim) in Ireland- -Independent Inquiry in UK recommends State Apology for victims-

#Firstdonoharm IMMDS UK Review Report – Key Recommendations

By Karen | July 8, 2020

#Firstdonhoharm Report – Key Recommendations The outcome of a two year inquiry in the UK which investigated how the British…

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Valproate Pregnancy

Epilepsy Ireland Survey Results on Epilim (Sodium Valproate) and Statement of same

By Karen | July 3, 2020

From the end of 2019 to the beginning of 2020, Epilepsy Ireland ran a survey aimed at measuring the effectiveness…

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T-Byrne

By Karen | May 21, 2020

Epilepsy is So Much More Than Seizures 2020 #MoreThanSeizures  The Testimony of Theresa Byrne     “I was first prescribed…

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The UK MHRA Update on Epilim-Valproate

By Karen | May 8, 2020

The UK MHRA Regulatory Guidance on the Epilim – Valproate Pregnancy Prevention Program (PREVENT) Temporary advice for management during coronavirus…

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Epilim - (Valproate) -Edition of the HPRA Drug Safety Newsletter

The May Edition of the HPRA Drug Safety Newsletter 

By Karen | May 6, 2020

The May Edition of the HPRA Drug Safety Newsletter which is a dedicated issue on serious teratogenic risks of Epilim▼-…

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“EASTER BUNNY COMPETITION TIME”

ACTIVITIES

By Karen | April 3, 2020

   Organisation Anticonvulsant Syndromes Ireland      “EASTER BUNNY COMPETITION TIME”   The OACS Ireland team have put together a…

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OACS Ireland – ACTIVITIES

By Karen | April 3, 2020

Rachel McManus: Works with ALL Social Groups in the area of Dublin and Meath. Her experience is vast, Rachel works…

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ACTIVITIES

LEGO – LEGO – LEGO ALL THINGS LEGO TECHNIC 2020

By Karen | April 2, 2020

  OACS Ireland is very proud to showcase the “amazing work with Lego Technic” that has been completed while staying…

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Organisation Anticonvulsant Syndromes – OACS Ireland – THE ARTWORK CORNER

By Karen | March 30, 2020

THE ARTWORK CORNER OACS Ireland are proud to show case some of the Artwork from the adults impacted by FVS…

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Downloads & Resources

Videos / Media

OACS Ireland: The Story So Far

Public Hearing on Valproate

Epilim (Sodium Valproate): For Patients*

Epilim (Sodium Valproate): For Hospital Doctors*

Epilim (Sodium Valproate): For Neurologists & Psychiatrists*

Epilim (Sodium Valproate): For GPs*

*The Medication Safety Minute Team in conjunction with Dr Colin Doherty, Epileptologist in St. James’s Hospital (SJH), have produced a series of 4 videos to highlight the risks associated with sodium valproate medicines if taken during pregnancy. Each of the videos highlights key points in relation to the management of the issue from a different perspective − that of the patient, the hospital doctor, the specialist (neurologist or psychiatrist), and the GP, respectively. These videos were released during National Epilepsy Week which aims to raise awareness Epilim (Sodium Valproate) in pregnancy.