News & Resouces

The Latest News from OACS Ireland

“The Epilim (Sodium Valproate) Dublin Protest by parents & children impacted by the drug”

By Karen | June 2, 2021

OACS Ireland is a voluntary organisation that supports families who have been impacted by the drug Epilim (Sodium Valproate. Epilepsy Ireland is the national patient organisation supporting and representing people with epilepsy and their families. OACS Ireland and Epilepsy Ireland…

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On the fourth day of #EpilepsyWeek, we focus on the families who have been impacted by Sodium Valproate (Epilim)

By Karen | May 27, 2021

On the fourth day of #EpilepsyWeek, we focus on the families who have been impacted by Sodium Valproate (Epilim). As a result of being exposed to Valproate in utero, families are caring for children with a range of disabilities –…

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Today as part of #EpilepsyWeek, we focus on the need for a Stakeholder Group !

By Karen | May 26, 2021

DAY 3 #EpilepsyWeek Today as part of #EpilepsyWeek, we focus on the need for a stakeholder group to be established by the Minister to review and strengthen the risk reduction measures around Sodium Valproate (Epilim). There are currently approximately 1,700…

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On the second day of #EpilepsyWeek we speak about the urgent need for Epilepsy Nurse Specialists !

By Karen | May 25, 2021

On the second day of #EpilepsyWeek, we continue our focus on the various elements of our campaign around Sodium Valproate(Epilim). Today we are highlighting how measures must be put in place to help ensure no family is impacted by Sodium…

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Today it is National Epilepsy Week #AdvocateForEpilepsy

By Karen | May 25, 2021

Today is the first day of National Epilepsy Week. We are joining with our colleagues in Epilepsy Ireland to #AdvocateForEpilepsy, and specifically, we will be focussing on our ongoing campaign surrounding Sodium Valproate(Epilim). Throughout the week, we will be focussing…

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HSE – Health Service Disruptions

By Karen | May 18, 2021

The cyber attack on the HSE IT systems has caused some disruptions to their services. Please see update. Hospital appointments Most appointments will go ahead as planned but many x-ray appointments are cancelled. See updates from each hospital by county Community…

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Has your child a Diagnosis of Fetal Valproate Syndrome or Fetal Valproate Spectrum Disorder ?

By Karen | April 29, 2021

OACS Ireland are contacting mothers who have received a diagnosis of (FVSD) or (FVS) Foetal Valproate Syndrome/Spectrum Disorder. To date OACS Ireland has put seven children and one adult forward to Primary Care Services. If you have a received a…

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-New Government face demands for Independent Inquiry from families impacted by Sodium Valproate (Epilim) in Ireland- -Independent Inquiry in UK recommends State Apology for victims-

Noteworthy – Valproate Scandal: Parents feel failed by State over drug that harmed their children.

By Karen | April 17, 2021

NOTEWORTHY – Valproate scandal: Parents feel failed by State over drug that harmed their children. Noteworthy finds that pleas for help from women impacted by valproate (Epilim) continue to be dismissed. BY MARIA DELANEY APRIL 16TH, 2021 19 MIN READ.…

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-New Government face demands for Independent Inquiry from families impacted by Sodium Valproate (Epilim) in Ireland- -Independent Inquiry in UK recommends State Apology for victims-

PRIME TIME The Department, The Data & The Disclosure.

By Karen | March 29, 2021

OACS Ireland have been overwhelmed by concerned members at the revelations in resent Prime Time Pogramme. As a Charity who represent a vulnerable group, trust and confidentiality should be at the center for the care and welfare of these individuals.…

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HPRA – Re – Covid-19

By Karen | February 26, 2021

The HPRA has published there third update last Thursday evening. The Chief Executive, Lorraine Nolan, also provided an update at the regular Thursday COVID-19 press conference at the Department of Health where she confirmed that: “Reassuringly, the nature of reports…

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Videos / Media

OACS Ireland: The Story So Far

Public Hearing on Valproate

Epilim (Sodium Valproate): For Patients*

Epilim (Sodium Valproate): For Hospital Doctors*

Epilim (Sodium Valproate): For Neurologists & Psychiatrists*

Epilim (Sodium Valproate): For GPs*

*The Medication Safety Minute Team in conjunction with Dr Colin Doherty, Epileptologist in St. James’s Hospital (SJH), have produced a series of 4 videos to highlight the risks associated with sodium valproate medicines if taken during pregnancy. Each of the videos highlights key points in relation to the management of the issue from a different perspective − that of the patient, the hospital doctor, the specialist (neurologist or psychiatrist), and the GP, respectively. These videos were released during National Epilepsy Week which aims to raise awareness Epilim (Sodium Valproate) in pregnancy.