News & Resouces

The Latest News from OACS Ireland

OACS Ireland launch Petition raising awareness of Campaign for Independent Inquiry.

By Karen | September 14, 2020

OACS Ireland have launched a new petition to raise awareness of our calls for an independent inquiry into sodium valproate (epilim). As we await correspondence from Minister Stephen Donnelly, the petition aims to increase awareness of our campaign amongst the…

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OACS Ireland & Epilepsy Ireland seek response from Minister Donnelly regarding Independent Inquiry on Sodium Valproate

By Karen | September 14, 2020

Together with our colleagues in Epilepsy Ireland, OACS Ireland have written again to Minister for Health, Deputy Stephen Donnelly, following up on our request for an urgent meeting to discuss the establishment of an independent inquiry for families impacted by Sodium…

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New Patient Information Leaflet Published for (Epilim▼) – Sodium Valproate

By Karen | August 20, 2020

An updated Patient Information Leaflet has been published for women and girls that are taking Sodium Valproate (Epilim). The Patient Information Leaflet has been updated to incorporate further research which has taken place on the potential impacts of the drug…

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TD Letter – for our ongoing campaign for an Independent Inquiry for Families affected by Sodium Valproate (Epilim).

By Karen | August 11, 2020

OACS Ireland are asking our members to write to their local TD to ask for their support for our ongoing campaign for  an Independent Inquiry for Families affected by Sodium Valproate (Epilim). You can see more on our calls for…

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“Fatherhood, AEDs and good news for men with epilepsy”

By Karen | July 19, 2020

  Many of the families involved with OACS Ireland have reported that often young men with epilepsy who would like to have children with their partners worry that by taking Sodium Valproate (Epilim) or other anti-epileptic drugs (AEDs) for their…

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OACS Ireland & Epilepsy Ireland on our Campaign for an Independent Inquiry (Epilim) Sodium Valproate in Ireland

By Karen | July 15, 2020

Today marks one week since the publication of the  ‘First Do No Harm’ report in the UK. In the wake of the report and it’s findings, OACS Ireland alongside our colleagues in Epilepsy Ireland called for an independent inquiry to…

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-New Government face demands for Independent Inquiry from families impacted by Sodium Valproate (Epilim) in Ireland -Independent Inquiry in UK recommends State Apology for victims-

By Karen | July 8, 2020

  The newly formed coalition Government must now commission an independent inquiry into the historical licencing and use of a common epilepsy drug according to patient groups, OACS Ireland and Epilepsy Ireland. Sodium Valproate (Epilim) has been licenced in Ireland…

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#Firstdonoharm IMMDS UK Review Report – Key Recommendations

By Karen | July 8, 2020

#Firstdonhoharm Report – Key Recommendations The outcome of a two year inquiry in the UK which investigated how the British Healthcare authorities responded to reports of patient concerns regarding the use of sodium valproate (epilim) in pregnancy to which OACS…

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Epilepsy Ireland Survey Results on Epilim (Sodium Valproate) and Statement of same

By Karen | July 3, 2020

From the end of 2019 to the beginning of 2020, Epilepsy Ireland ran a survey aimed at measuring the effectiveness of measures introduced in 2018 on the prescribing and dispensing of Sodium Valproate (Epilim). Epilepsy Ireland have now released the…

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Epilepsy is So Much More Than Seizures 2020

By Karen | May 21, 2020

Epilepsy is So Much More Than Seizures 2020 #MoreThanSeizures  The Testimony of Theresa Byrne “I was first prescribed Epilim (Sodium Valproate) in 1986 for generalised epilepsy.  At that point, I did not know about the impact it would have on…

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Videos / Media

OACS Ireland: The Story So Far

Public Hearing on Valproate

Epilim (Sodium Valproate): For Patients*

Epilim (Sodium Valproate): For Hospital Doctors*

Epilim (Sodium Valproate): For Neurologists & Psychiatrists*

Epilim (Sodium Valproate): For GPs*

*The Medication Safety Minute Team in conjunction with Dr Colin Doherty, Epileptologist in St. James’s Hospital (SJH), have produced a series of 4 videos to highlight the risks associated with sodium valproate medicines if taken during pregnancy. Each of the videos highlights key points in relation to the management of the issue from a different perspective − that of the patient, the hospital doctor, the specialist (neurologist or psychiatrist), and the GP, respectively. These videos were released during National Epilepsy Week which aims to raise awareness Epilim (Sodium Valproate) in pregnancy.