The Latest News from OACS Ireland
OACS Ireland have launched a new petition to raise awareness of our calls for an independent inquiry into sodium valproate (epilim). As we await correspondence from Minister Stephen Donnelly, the petition aims to increase awareness of our campaign amongst the…More . . .
OACS Ireland & Epilepsy Ireland seek response from Minister Donnelly regarding Independent Inquiry on Sodium Valproate
Together with our colleagues in Epilepsy Ireland, OACS Ireland have written again to Minister for Health, Deputy Stephen Donnelly, following up on our request for an urgent meeting to discuss the establishment of an independent inquiry for families impacted by Sodium…More . . .
An updated Patient Information Leaflet has been published for women and girls that are taking Sodium Valproate (Epilim). The Patient Information Leaflet has been updated to incorporate further research which has taken place on the potential impacts of the drug…More . . .
TD Letter – for our ongoing campaign for an Independent Inquiry for Families affected by Sodium Valproate (Epilim).
OACS Ireland are asking our members to write to their local TD to ask for their support for our ongoing campaign for an Independent Inquiry for Families affected by Sodium Valproate (Epilim). You can see more on our calls for…More . . .
Many of the families involved with OACS Ireland have reported that often young men with epilepsy who would like to have children with their partners worry that by taking Sodium Valproate (Epilim) or other anti-epileptic drugs (AEDs) for their…More . . .
OACS Ireland & Epilepsy Ireland on our Campaign for an Independent Inquiry (Epilim) Sodium Valproate in Ireland
Today marks one week since the publication of the ‘First Do No Harm’ report in the UK. In the wake of the report and it’s findings, OACS Ireland alongside our colleagues in Epilepsy Ireland called for an independent inquiry to…More . . .
-New Government face demands for Independent Inquiry from families impacted by Sodium Valproate (Epilim) in Ireland -Independent Inquiry in UK recommends State Apology for victims-
The newly formed coalition Government must now commission an independent inquiry into the historical licencing and use of a common epilepsy drug according to patient groups, OACS Ireland and Epilepsy Ireland. Sodium Valproate (Epilim) has been licenced in Ireland…More . . .
#Firstdonhoharm Report – Key Recommendations The outcome of a two year inquiry in the UK which investigated how the British Healthcare authorities responded to reports of patient concerns regarding the use of sodium valproate (epilim) in pregnancy to which OACS…More . . .
From the end of 2019 to the beginning of 2020, Epilepsy Ireland ran a survey aimed at measuring the effectiveness of measures introduced in 2018 on the prescribing and dispensing of Sodium Valproate (Epilim). Epilepsy Ireland have now released the…More . . .
Downloads & Resources
Links to Website Resources
- OACS Facebook Group
- OACS YouTube Channel
- OACS UK Charity
- Epilepsy Ireland
- Irish Epilepsy and Pregnancy Register
- Irish Family Planning Association
- Birth Control (HSE Website)
- Valproate (Epilim) Patient Booklet (HPRA)
- EMA – Information & reviews on Valproate
- Valproate Information(HSE Website)
- Meeting highlights from PRAC
- OACS Ireland Leaflet
- National Conference on the Consequences of Sodium Valproate
- Joint Committee on Health Report on Foetal Anti-Convulsant Syndrome
- Valproate (Epilim) is a medicine licensed in Ireland to treat epilepsy and bipolar disorder
- 2019 Neurology Referral Specialist
- HSE Report on prenatal exposure
- 2018 Sodium Valproate who knew what and when
- 2019 Videos from the National Conference on Sodium Valproate
- 2018 FACS Forum welcomes HSE’s plans to contact patients directly regarding Sodium Valproate
- 2019 Study identifies the risk of malformations associated with prenatal exposure to 10 epilepsy drugs
Videos / Media
OACS Ireland: The Story So Far
Public Hearing on Valproate
Epilim (Sodium Valproate): For Patients*
Epilim (Sodium Valproate): For Hospital Doctors*
Epilim (Sodium Valproate): For Neurologists & Psychiatrists*
Epilim (Sodium Valproate): For GPs*
*The Medication Safety Minute Team in conjunction with Dr Colin Doherty, Epileptologist in St. James’s Hospital (SJH), have produced a series of 4 videos to highlight the risks associated with sodium valproate medicines if taken during pregnancy. Each of the videos highlights key points in relation to the management of the issue from a different perspective − that of the patient, the hospital doctor, the specialist (neurologist or psychiatrist), and the GP, respectively. These videos were released during National Epilepsy Week which aims to raise awareness Epilim (Sodium Valproate) in pregnancy.