News & Resouces

The Latest News from OACS Ireland

ACTIVITIES

LEGO – LEGO – LEGO ALL THINGS LEGO TECHNIC 2020

By Karen | April 2, 2020

  OACS Ireland is very proud to showcase the “amazing work with Lego Technic” that has been completed while staying home due to Coronavirus. We find that some of our children are very creative with Lego Technic as they grow.…

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Organisation Anticonvulsant Syndromes – OACS Ireland – THE ARTWORK CORNER

By Karen | March 30, 2020

THE ARTWORK CORNER OACS Ireland are proud to show case some of the Artwork from the adults impacted by FVS and/or FVSD. We find some of our children grow up with some “amazing talents” which we are very proud showcase.…

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“COVID – 19 Updates”

By Karen | March 29, 2020

Organisation Anticonvulsant Syndrome OACS Ireland As the emergence of Coronavirus in Ireland continues, we are receving queries from people with Fetal Valproate Syndrome (FVS) / Fetal Valproate Spectrum Disorder (FVSD) and their families about what the virus may mean for…

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IMPORTANT UPDATE via the MHRA

By oacsireland | February 17, 2020

In January 2020, relevant healthcare professionals were sent by post or Alliance Tote boxes (for pharmacies) a letter and updated educational materials. The MHRA Valproate guidance page has also been updated with the latest materials. https://www.gov.uk/drug-safety-update/valproate-epilim-depakote-pregnancy-prevention-programme-updated-educational-materials  A reminder of key facts about…

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(OACS Ireland) Our thanks to The Saturday Hospital Fund

By oacsireland | February 16, 2020

OACS Ireland want, to express our deepest thanks for the support off the Hospital Saturday Fund donation to Organisation for Anticonvulsant Syndromes Ireland. The Saturday Hospital Fund has been a generous donor who provided OACS Ireland with the financial and…

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UPDATE: #GE2020 Candidates Supporting OACS Ireland

By oacsireland | February 6, 2020

#GE2020 Update on Candidates Supporting OACS Ireland With the General Election campaign in it’s final days, OACS Ireland (Organisation for Anti-Convulsant Syndrome have been busy reaching out to candidates seeking support for our manifesto for the next Dáil term. It…

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Parties support investigation into sodium valproate prescription

By oacsireland | January 29, 2020

OACS Ireland has received some incredible news: Parties support an investigation into sodium valproate prescription. SOURCE: Medical Independent (MI) By Catherine Reilly January 29, 2020 Sinn Féin has committed in its election manifesto to investigating the prescription of sodium valproate (Epilim),…

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Organisation Anticonvulsant Syndromes Ireland 2020 Manifesto #GE2020

By oacsireland | January 28, 2020

With the calling of the General Election, this represents an important opportunity to highlight our ongoing campaign for families affected by Sodium Valproate (Epilim) with prospective members of the 33rd Dáil. To that end, we have launched our General Election 2020 manifesto…

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The Valproate Report Mystery

By oacsireland | January 9, 2020

Where’s the Valproate Report?  Senator Rose Conway-Walsh has been asking this for many months. Why the delay in releasing it? Don’t the Health Minister and his team comprehend the urgency of this report to the families of children with disabilities…

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Reader response: Unintended pregnancy, prenatal care, new-born outcomes, and breastfeeding in women with epilepsy

By oacsireland | September 13, 2019

Alain Braillon, Senior Consultant, University Hospital. 80000 Amiens. (Amiens, France) Susan Bewley, Pr., King’s College (London, UK) Published August 19, 2019 Pennell and Meador rightly expressed concern about reducing birth defects in women with epilepsy with their editorial endorsing the EURAP registry (a prospective registry of…

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Videos / Media

OACS Ireland: The Story So Far

Public Hearing on Valproate

Epilim (Sodium Valproate): For Patients*

Epilim (Sodium Valproate): For Hospital Doctors*

Epilim (Sodium Valproate): For Neurologists & Psychiatrists*

Epilim (Sodium Valproate): For GPs*

*The Medication Safety Minute Team in conjunction with Dr Colin Doherty, Epileptologist in St. James’s Hospital (SJH), have produced a series of 4 videos to highlight the risks associated with sodium valproate medicines if taken during pregnancy. Each of the videos highlights key points in relation to the management of the issue from a different perspective − that of the patient, the hospital doctor, the specialist (neurologist or psychiatrist), and the GP, respectively. These videos were released during National Epilepsy Week which aims to raise awareness Epilim (Sodium Valproate) in pregnancy.