OACS Ireland launch idonate fundraiser appeal
The Organisation for Anti-Convulsant (OACS) Ireland is dedicated to supporting and advocating for families affected by Foetal Valproate Syndrome/Spectrum Disorder. We are a volunteer-run organization led by parents, and funding is crucial to our cause.
The Non-statutory inquiry into Sodium Valproate
The upcoming non-statutory inquiry will meticulously document the progression of sodium valproate regulation of the drug in Ireland, as well as the practices and controls surrounding its prescription and dispensing .
The Valproate Response Project
As part of the Valproate Response Project established in 2018, the Health Service Executive (HSE) has compiled a Rapid Assessment report on the prevalence of sodium valproate (Epilim) exposure among women and children in Ireland over the last four decades.
The figures on Dr Ronan Glynn's, (Specialist in Public Health Medicine) report on Epilim (Sodium Valproate). Between 1975 and 2015.
- Between 1975 and 2015, approximately 3,083 maternities were in women who were taking valproate when becoming pregnant.
- Between 1975 and 2015, approximately 3,126 babies were potentially exposed to valproate in utero. Of these, it is estimated that 873 were born between 2000 and 2015 (i.e. currently 18 years old or younger).
- From 1975 and 2015, between 153 and 341 children will have experienced a major congenital malformation and up to 1,250 children will have experienced some form of neurodevelopmental delay following exposure to valproate in the womb.
- An estimated 43 – 95 children under the age of 16 today will have experienced a major congenital malformation as a result of valproate exposure and 349 will have experienced some form of neurodevelopmental delay.
To Make a Donation to OACS via idonate please visit or share this link
https://www.idonate.ie/fundraiser/OACSadmin
Where Your Money Goes
Funds raised through the I-donate OACS Ireland Fundraiser page will assist our Voluntary OACS Group with the ongoing Admin cost of operating the charity.
In particular we need funds for our Office Admin, Printing, Phone, Internet / Website and Social Media Costs to help us build awareness and to offer support to families affected by Foetal Valproate Syndrome/Spectrum Disorder.
Organisation for Anti-Convulsant Syndromes Ireland (OACS Ireland)
OACS Ireland is a voluntary group, we also provide support, help and advice to other families, whose children have been affected by Foetal Anti-Convulsant Syndrome (F.A.C.S) in Ireland. If you or your child has been impacted by valproate exposure, or if you would like more information, please do not hesitate to contact us info.oacsireland@gmail.com; Twitter - @oacsireland.