News & Resouces

The Latest News from OACS Ireland

(OACS Ireland) Our thanks to The Saturday Hospital Fund

By oacsireland | February 16, 2020

OACS Ireland want, to express our deepest thanks for the support off the Hospital Saturday Fund donation to Organisation for Anticonvulsant Syndromes Ireland. The Saturday Hospital Fund has been a generous donor who provided OACS Ireland with the financial and…

More . . .

UPDATE: #GE2020 Candidates Supporting OACS Ireland

By oacsireland | February 6, 2020

#GE2020 Update on Candidates Supporting OACS Ireland With the General Election campaign in it’s final days, OACS Ireland (Organisation for Anti-Convulsant Syndrome have been busy reaching out to candidates seeking support for our manifesto for the next Dáil term. It…

More . . .

Parties support investigation into sodium valproate prescription

By oacsireland | January 29, 2020

OACS Ireland has received some incredible news: Parties support an investigation into sodium valproate prescription. SOURCE: Medical Independent (MI) By Catherine Reilly January 29, 2020 Sinn Féin has committed in its election manifesto to investigating the prescription of sodium valproate (Epilim),…

More . . .

Organisation Anticonvulsant Syndromes Ireland 2020 Manifesto #GE2020

By oacsireland | January 28, 2020

With the calling of the General Election, this represents an important opportunity to highlight our ongoing campaign for families affected by Sodium Valproate (Epilim) with prospective members of the 33rd Dáil. To that end, we have launched our General Election 2020 manifesto…

More . . .

The Valproate Report Mystery

By oacsireland | January 9, 2020

Where’s the Valproate Report?  Senator Rose Conway-Walsh has been asking this for many months. Why the delay in releasing it? Don’t the Health Minister and his team comprehend the urgency of this report to the families of children with disabilities…

More . . .

Reader response: Unintended pregnancy, prenatal care, new-born outcomes, and breastfeeding in women with epilepsy

By oacsireland | September 13, 2019

Alain Braillon, Senior Consultant, University Hospital. 80000 Amiens. (Amiens, France) Susan Bewley, Pr., King’s College (London, UK) Published August 19, 2019 Pennell and Meador rightly expressed concern about reducing birth defects in women with epilepsy with their editorial endorsing the EURAP registry (a prospective registry of…

More . . .

1st National Conference on The Consequences of Sodium Valproate (Update)

By oacsireland | May 15, 2019

As you may be aware OACS Ireland attended the 1st National Conference on The Consequences of Sodium Valproate in  Trinity College Dublin on March 22nd 2019. This event was organised by the Health Service Executive, Epilepsy Ireland, OACS Ireland, Trinity…

More . . .

National Conference on the Consequences of Sodium Valproate (Epilim)

By oacsireland | March 15, 2019

For patients & families, healthcare professionals and policy makers Organised by the Health Service Executive, Epilepsy Ireland, OACS Ireland, Trinity College Dublin and the FACS Forum Friday March 22nd 2019 – 9.30am – 5pm Register: https://www.eventbrite.ie/ More Info: https://www.epilepsy.ie/content/national-conference-consequences-sodium-valproate-epilim-50-years Stanley…

More . . .

Our New Website

By oacsireland | March 14, 2019

Welcome to our new website and the home of OACS Ireland. OACS Ireland is a voluntary group, we provide support, help, and advice to other families, whose children have been affected by Foetal Anti-Convulsant Syndrome (F.A.C.S) in Ireland. Our Mission…

More . . .

UK Independent Medicines and Medical Devices Safety Review

By oacsireland | February 18, 2019

UK Independent Medicines and Medical Devices Safety Review About the UK Independent Medicines and Medical Devices Safety Review which is Chaired by Baroness Julia Cumberlege CBE DL. The Review was announced in February 2018 by the Secretary of State for…

More . . .

Videos / Media

OACS Ireland: The Story So Far

Public Hearing on Valproate

Epilim (Sodium Valproate): For Patients*

Epilim (Sodium Valproate): For Hospital Doctors*

Epilim (Sodium Valproate): For Neurologists & Psychiatrists*

Epilim (Sodium Valproate): For GPs*

*The Medication Safety Minute Team in conjunction with Dr Colin Doherty, Epileptologist in St. James’s Hospital (SJH), have produced a series of 4 videos to highlight the risks associated with sodium valproate medicines if taken during pregnancy. Each of the videos highlights key points in relation to the management of the issue from a different perspective − that of the patient, the hospital doctor, the specialist (neurologist or psychiatrist), and the GP, respectively. These videos were released during National Epilepsy Week which aims to raise awareness Epilim (Sodium Valproate) in pregnancy.