The Latest News from OACS Ireland
ACTIVITIES
Organisation Anticonvulsant Syndromes Ireland “EASTER BUNNY COMPETITION TIME” The OACS Ireland team have put together a collection of Free to print Easter colouring pages that you can download for all ages and for you to enjoy…
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OACS Ireland – ACTIVITIES
Rachel McManus: Works with ALL Social Groups in the area of Dublin and Meath. Her experience is vast, Rachel works with adults with Special needs in (Prosper Meath), Autistic Groups, and Mainstream. She has witnessed the amazing effects of LEGO…
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LEGO – LEGO – LEGO ALL THINGS LEGO TECHNIC 2020
OACS Ireland is very proud to showcase the “amazing work with Lego Technic” that has been completed while staying home due to Coronavirus. We find that some of our children are very creative with Lego Technic as they grow.…
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Organisation Anticonvulsant Syndromes – OACS Ireland – THE ARTWORK CORNER
THE ARTWORK CORNER OACS Ireland are proud to show case some of the Artwork from the adults impacted by FVS and/or FVSD. We find some of our children grow up with some “amazing talents” which we are very proud showcase.…
More . . .“COVID – 19 Updates”
Organisation Anticonvulsant Syndrome OACS Ireland As the emergence of Coronavirus in Ireland continues, we are receving queries from people with Fetal Valproate Syndrome (FVS) / Fetal Valproate Spectrum Disorder (FVSD) and their families about what the virus may mean for…
More . . .IMPORTANT UPDATE via the MHRA
In January 2020, relevant healthcare professionals were sent by post or Alliance Tote boxes (for pharmacies) a letter and updated educational materials. The MHRA Valproate guidance page has also been updated with the latest materials. https://www.gov.uk/drug-safety-update/valproate-epilim-depakote-pregnancy-prevention-programme-updated-educational-materials A reminder of key facts about…
More . . .(OACS Ireland) Our thanks to The Saturday Hospital Fund
OACS Ireland want, to express our deepest thanks for the support off the Hospital Saturday Fund donation to Organisation for Anticonvulsant Syndromes Ireland. The Saturday Hospital Fund has been a generous donor who provided OACS Ireland with the financial and…
More . . .UPDATE: #GE2020 Candidates Supporting OACS Ireland
#GE2020 Update on Candidates Supporting OACS Ireland With the General Election campaign in it’s final days, OACS Ireland (Organisation for Anti-Convulsant Syndrome have been busy reaching out to candidates seeking support for our manifesto for the next Dáil term. It…
More . . .Parties support investigation into sodium valproate prescription
OACS Ireland has received some incredible news: Parties support an investigation into sodium valproate prescription. SOURCE: Medical Independent (MI) By Catherine Reilly January 29, 2020 Sinn Féin has committed in its election manifesto to investigating the prescription of sodium valproate (Epilim),…
More . . .Organisation Anticonvulsant Syndromes Ireland 2020 Manifesto #GE2020
With the calling of the General Election, this represents an important opportunity to highlight our ongoing campaign for families affected by Sodium Valproate (Epilim) with prospective members of the 33rd Dáil. To that end, we have launched our General Election 2020 manifesto…
More . . .Downloads & Resources
Links to Website Resources
- OACS Facebook Group
- OACS YouTube Channel
- OACS UK Charity
- Epilepsy Ireland
- Irish Epilepsy and Pregnancy Register
- Irish Family Planning Association
- Birth Control (HSE Website)
- Valproate (Epilim) Patient Booklet (HPRA)
- EMA – Information & reviews on Valproate
- Valproate Information(HSE Website)
- Meeting highlights from PRAC
Download Resources
- OACS Ireland Leaflet
- National Conference on the Consequences of Sodium Valproate
- Joint Committee on Health Report on Foetal Anti-Convulsant Syndrome
- Valproate (Epilim) is a medicine licensed in Ireland to treat epilepsy and bipolar disorder
- 2019 Neurology Referral Specialist
- HSE Report on prenatal exposure
- 2018 Sodium Valproate who knew what and when
- 2019 Videos from the National Conference on Sodium Valproate
- 2018 FACS Forum welcomes HSE’s plans to contact patients directly regarding Sodium Valproate
- 2019 Study identifies the risk of malformations associated with prenatal exposure to 10 epilepsy drugs
Videos / Media
OACS Ireland: The Story So Far
Public Hearing on Valproate
Epilim (Sodium Valproate): For Patients*
Epilim (Sodium Valproate): For Hospital Doctors*
Epilim (Sodium Valproate): For Neurologists & Psychiatrists*
Epilim (Sodium Valproate): For GPs*
*The Medication Safety Minute Team in conjunction with Dr Colin Doherty, Epileptologist in St. James’s Hospital (SJH), have produced a series of 4 videos to highlight the risks associated with sodium valproate medicines if taken during pregnancy. Each of the videos highlights key points in relation to the management of the issue from a different perspective − that of the patient, the hospital doctor, the specialist (neurologist or psychiatrist), and the GP, respectively. These videos were released during National Epilepsy Week which aims to raise awareness Epilim (Sodium Valproate) in pregnancy.