The HSE Chief Officer’s Community Operation List for Foetal Valproate Spectrum Disorder/Syndrome (FVSD) / (FVS).

For families that have received a diagnosis of Foetal Valproate Spectrum Disorder/Syndrome (FVSD) / (FVS).

The HSE estimate that 1,250 children in Ireland have been impacted by exposure to (Sodium Valproate) (Epilim) in the womb. Many of these families were not made aware of the risks of the drug if taken in pregnancy and as a result, women are caring for children with lifelong and severe disabilities. If your child/children have received a diagnosis of (FVSD) / (FVS) that needs to avail of services, you can request these services through your Chief Officer Community Operation of your area.

OACS Ireland would like to thank the family who provided us with this photo.

For families that that are awaiting a diagnosis of Foetal Valproate Spectrum Disorder/Syndrome (FVSD) / (FVS).

Patients that will receive an assessment of their needs are Dr. Saggar’s patients. These patients will have to provide Chief Officer Community Operation there with their assessment of their needs and diagnosis when they receive it from Dr. Saggar.

For families that have previously received a diagnosis of Foetal Valproate Spectrum Disorder/Syndrome (FVSD) / (FVS).

For all families who previously has received a diagnosis of FVS/ FVSD they will not have to provide there Chief Officer Community Operation of their area with proof of diagnoses and/or an assessment of needs. These patients will have no assessment of needs. The families that previously, attended genetics that received a diagnosis of FVS/FVSD only received a community operations email address. The Office of Dr. Colm Henry has stated that these families do no require to show proof of diagnosis.

Once the Chief Officer Community Operation of your area receives your phone call and/or email with a list of your child/children’s needs. They are then meant to ensure that your child/children are prioritised for the relevant appointments and ensure your child/children needs are met in full.

To all the Chief Officers Community Operations

We would ask all Chief Officers Community Operations that when families contact you that you could ensure that the necessary appointments and requests are put in place for said families through your office rather than families being passed onto another area whether this service is outsourced or not. We would appreciate your help and support in ensuring that families do not have to make individual appointments. At this point in time families in Ireland have been through enough. Many families will NOT show the diagnosis letters that they previously received from genetics. We would ask all Chief Officer’s Community Operation to treat our families with the upmost respect and dignity.

Looking for the correct diagnosis Foetal Valproate Spectrum Disorder/Syndrome (FVSD) / (FVS).

If you think that your child may have been affected by Epilim and wish to seek a correct diagnosis of FVS/FVSD please contact OACS Ireland for advice about how to receive a diagnosis. We will then send you the correct details and information.

Chief Officer’s Community Operation details in relation to families who received a diagnoses of Foetal Valproate Spectrum Disorder/Syndrome (FVSD) / (FVS).

If your child/children have received a diagnosis of (FVSD) / (FVS) that needs to avail of services, you can request these services through your Chief Officer Community Operation of your area. Their names and details are now made available below. OACS Ireland are still waiting for the HSE and/or DoH to reply to our request about the much needed medical cards.

Please be advised that the names on the below document is subject to change overtime. OACS Ireland would like families to inform us if this happens. We can then ensure that this document is updated.

3 Comments

  1. Helen fahey on June 22, 2021 at 4:30 pm

    Simple question regards other counties not mentioned and what supports if any , offered .



    • Karen on July 30, 2021 at 9:14 am

      Hello Helen, nice to hear from you.
      CHO’s have been specifically designed to cover the 26 counties of Ireland.



  2. Adrienne Pettigrew on June 22, 2021 at 6:27 pm

    This is.good progress. At least now we have a name. We can contact. Rather then been shoved around to every Tom-dick + harry….can I ask OACS have asked for the medical card for all, have you requested the TravelCard to?? As not all have car transport?